A Lil Lytnin' Strikes Lung Cancer

Living, Loving, and Momming It Up with Stage IV Lung Cancer

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Wednesday, December 19, 2018

California Dreamin’

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Jason and I got married in a perfect, tiny ceremony on the beach in San Clemente, California, then honeymooned in nearby San Diego. On each ...
7 comments:
Sunday, December 09, 2018

Pause

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I am now 9 weeks post brain surgery on my cerebellum. And 1.5 weeks post targeted radiation to my cerebellum. And 4 weeks post-entry into ...
2 comments:
Monday, November 19, 2018

Radiating My Brain

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I have completed treatment 2 of 5 for my targeted brain radiation. You may recall that, since there WAS living tumor in the section they rem...
2 comments:
Sunday, November 04, 2018

If Brain Surgery Wasn’t Enough

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The good news is that my brain surgery recovery is coming along really well. I’ve even been approved to start driving again, so Jason is tak...
7 comments:
Wednesday, October 10, 2018

Home Home Home

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I made it home Saturday afternoon and am now slowly rebuilding my strength surrounded by my beloved family. The surgery went well and...
8 comments:
Tuesday, October 02, 2018

Batten Down the Hatches

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I saw my surgeon on Monday and all systems are go for brain surgery on Thursday, October 4. I’m oscillating between being incredibly nervo...
5 comments:
Tuesday, September 18, 2018

It’s been a rough year.

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For those of you dear readers who have been following my ongoing health drama, you may recall that in December 2017, a new little brain met...
15 comments:
Friday, July 13, 2018

Meh.

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I got the results from my every-8-week scans for the clinical trial, and the overall reaction is ... meh. Things are not getting better, b...
4 comments:
Tuesday, May 29, 2018

five.

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So here we are. Five years. When I was diagnosed with metastatic lung cancer, the statistics said that my chances of living to see this day ...
6 comments:
Monday, May 14, 2018

Good enough

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Thankfully my scans were much less of a roller coaster this time around. The consensus was that the brain mets are probably stable, so I can...
1 comment:
Thursday, March 22, 2018

The Whole Long Story

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I don't even know where to start. The past 4 days have been completely absurd. As of Monday morning, I was out of the clinical trial b...
8 comments:
Monday, March 19, 2018

Bad-A$$ Birthday

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I started off my birthday this morning in the most bad-a$$ way possible - by getting kicked out of my clinical trial. Yes, that’s right, ea...
4 comments:
Thursday, February 01, 2018

Good-ish

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I was surprised and a little embarrassed to see that I have my every-other-week clinical trial checkup  on Monday , meaning it has been alm...
6 comments:
Tuesday, December 26, 2017

The Moment We've All Been Waiting For

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I got my drugs! I got my drugs! I got my drugs! My first dose of entrectinib Now let's hope they work.
3 comments:
Thursday, December 21, 2017

Waiting...waiting...waiting...

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Well, my liver counts have been dropping, but they still aren't low enough to start the trial. Because of the holiday weekend, my next p...
1 comment:
Monday, December 18, 2017

Here's your medicine - JUST KIDDING!

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Well, faithful reader, you may recall that I was supposed to start my clinical trial today. All the tests were run, all the "i"s...
4 comments:
Wednesday, December 13, 2017

I'm In!!!

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The past two weeks have consisted of a brain MRI, chest CT scan, countless tubes of blood drawn, urine test, EKG, extensive health history, ...
1 comment:
Sunday, December 03, 2017

Goodbye Xalkori My Old Friend

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Well, we have been waiting for the next sign of progression as the cue that it was time to switch drugs, and it looks like the time is now. ...
7 comments:
Monday, May 29, 2017

Four.

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Four years ago today I was diagnosed with lung cancer. We wouldn't find our for several days just how bad it was. This time four years a...
4 comments:
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