The good news is that the counts have been dropping pretty dramatically, meaning this is almost certainly a reaction to withdrawing from my medicine, rather than something more sinister (liver failure, cancer progression, etc).
I have been eating all sorts of liver-healthy foods (beets, watermelon, walnuts, lemon water), and the trial coordinator said to keep doing whatever I'm doing, because it's working!
I'm really disappointed, and fearful that by December 26 I will have been off of cancer medicine for 18 days. I'm trying not to stress (ha ha ha) and enjoy the fact that for the first time in over 4 years I don't feel nauseated when I wake up. So that's a plus.
That's my story for now. Happy holidays from our family to you and yours. And if you are looking for me, I'll be the person hanging out guzzling watermelon-beet juice and munching on walnuts.
I found your blog again and am glad I did. I got lung cancer 4 1/2 years ago and had all the usual, chemo, radiation, surgery. I have been on Xalkori for a year and it seems to be working and Pfeizer is sending it to me, no way could I afford it. I have nausea every morning and during the day even with pills. I have no appetite and food doesn't taste right. Thank you for your blog and Merry Christmas to all in your family....
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