A Lil Lytnin' Strikes Lung Cancer

Living, Loving, and Momming It Up with Stage IV Lung Cancer

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Tuesday, May 29, 2018

five.

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So here we are. Five years. When I was diagnosed with metastatic lung cancer, the statistics said that my chances of living to see this day ...
6 comments:
Monday, May 14, 2018

Good enough

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Thankfully my scans were much less of a roller coaster this time around. The consensus was that the brain mets are probably stable, so I can...
1 comment:
Thursday, March 22, 2018

The Whole Long Story

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I don't even know where to start. The past 4 days have been completely absurd. As of Monday morning, I was out of the clinical trial b...
8 comments:
Monday, March 19, 2018

Bad-A$$ Birthday

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I started off my birthday this morning in the most bad-a$$ way possible - by getting kicked out of my clinical trial. Yes, that’s right, ea...
4 comments:
Thursday, February 01, 2018

Good-ish

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I was surprised and a little embarrassed to see that I have my every-other-week clinical trial checkup  on Monday , meaning it has been alm...
6 comments:
Tuesday, December 26, 2017

The Moment We've All Been Waiting For

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I got my drugs! I got my drugs! I got my drugs! My first dose of entrectinib Now let's hope they work.
3 comments:
Thursday, December 21, 2017

Waiting...waiting...waiting...

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Well, my liver counts have been dropping, but they still aren't low enough to start the trial. Because of the holiday weekend, my next p...
1 comment:
Monday, December 18, 2017

Here's your medicine - JUST KIDDING!

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Well, faithful reader, you may recall that I was supposed to start my clinical trial today. All the tests were run, all the "i"s...
4 comments:
Wednesday, December 13, 2017

I'm In!!!

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The past two weeks have consisted of a brain MRI, chest CT scan, countless tubes of blood drawn, urine test, EKG, extensive health history, ...
1 comment:
Sunday, December 03, 2017

Goodbye Xalkori My Old Friend

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Well, we have been waiting for the next sign of progression as the cue that it was time to switch drugs, and it looks like the time is now. ...
7 comments:
Monday, May 29, 2017

Four.

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Four years ago today I was diagnosed with lung cancer. We wouldn't find our for several days just how bad it was. This time four years a...
4 comments:
Tuesday, February 28, 2017

The Best Bad News

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I'm sure you have all been following my brain met saga with baited breath ;) so today I will bring you the latest MRI results, which are...
6 comments:
Friday, October 14, 2016

10 Tips for Coping with Scanxiety

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I have my every-three-month scans coming up on Friday, and I am already a nervous wreck. The week or so leading up to my scans I, like clock...
1 comment:
Thursday, July 07, 2016

Listen for Zebras: A ROS1 Lung Cancer Story

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There's an old saying in medicine, "When you hear hoof beats, think horses, not zebras." The logic behind the adage is that th...
Thursday, June 02, 2016

How Much Do You Want To Know About Your Cancer?

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I came across this NY Times article, "How Much Do You Want To Know About Your Cancer," and I was moved to comment. Apparently I ha...
3 comments:
Friday, May 06, 2016

Brain Surgery Light v2.0

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Having been through the halo version of SRS (stereotactic radiosurgery) and the fancy new frameless "Edge" technology, I defini...
9 comments:
Thursday, April 28, 2016

Riding the SRS Train

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Well, another little bugger showed up on my MRI. The good news is that it's small (5mm) and we caught it early so SRS ( stereotactic rad...
3 comments:
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