A Lil Lytnin' Strikes Lung Cancer

Living, Loving, and Momming It Up with Stage IV Lung Cancer

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Tuesday, December 26, 2017

The Moment We've All Been Waiting For

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I got my drugs! I got my drugs! I got my drugs! My first dose of entrectinib Now let's hope they work.
3 comments:
Thursday, December 21, 2017

Waiting...waiting...waiting...

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Well, my liver counts have been dropping, but they still aren't low enough to start the trial. Because of the holiday weekend, my next p...
1 comment:
Monday, December 18, 2017

Here's your medicine - JUST KIDDING!

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Well, faithful reader, you may recall that I was supposed to start my clinical trial today. All the tests were run, all the "i"s...
4 comments:
Wednesday, December 13, 2017

I'm In!!!

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The past two weeks have consisted of a brain MRI, chest CT scan, countless tubes of blood drawn, urine test, EKG, extensive health history, ...
1 comment:
Sunday, December 03, 2017

Goodbye Xalkori My Old Friend

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Well, we have been waiting for the next sign of progression as the cue that it was time to switch drugs, and it looks like the time is now. ...
7 comments:
Monday, May 29, 2017

Four.

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Four years ago today I was diagnosed with lung cancer. We wouldn't find our for several days just how bad it was. This time four years a...
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Tuesday, February 28, 2017

The Best Bad News

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I'm sure you have all been following my brain met saga with baited breath ;) so today I will bring you the latest MRI results, which are...
6 comments:
Friday, October 14, 2016

10 Tips for Coping with Scanxiety

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I have my every-three-month scans coming up on Friday, and I am already a nervous wreck. The week or so leading up to my scans I, like clock...
1 comment:
Thursday, July 07, 2016

Listen for Zebras: A ROS1 Lung Cancer Story

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There's an old saying in medicine, "When you hear hoof beats, think horses, not zebras." The logic behind the adage is that th...
Thursday, June 02, 2016

How Much Do You Want To Know About Your Cancer?

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I came across this NY Times article, "How Much Do You Want To Know About Your Cancer," and I was moved to comment. Apparently I ha...
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Friday, May 06, 2016

Brain Surgery Light v2.0

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Having been through the halo version of SRS (stereotactic radiosurgery) and the fancy new frameless "Edge" technology, I defini...
9 comments:
Thursday, April 28, 2016

Riding the SRS Train

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Well, another little bugger showed up on my MRI. The good news is that it's small (5mm) and we caught it early so SRS ( stereotactic rad...
3 comments:
Thursday, March 24, 2016

A Day I Never Expected to See With Metastatic Cancer

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This weekend I celebrated a day I never expected to see – my fortieth birthday! It has been almost three years since that awful day when I f...
Wednesday, February 10, 2016

Parenting with a Chronic Illness

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My daughter shared her cold with me (thanks, Miks) and when you mix a simple cold with a "chronic disease" like metastatic lung ca...
3 comments:
Monday, November 30, 2015

Day 30: Jamie Shull, advocate. "Anyone with lungs can get lung cancer."

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 30: Jamie Shull, advocate "Anyone with lungs can get lung cancer....
Sunday, November 29, 2015

Day 29: Genevieve de Renne, caregiver. "Never underestimate the power of love, and the power of your own thoughts."

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 29: Genevieve de Renne, caregiver "Never underestimate the power of lo...
Saturday, November 28, 2015

Day 28: Dr. Alice Shaw. "Alice is my super-hero."

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 28: Dr. Alice Shaw "Alice is my super-hero." (From Linnea Olson...
Friday, November 27, 2015

Day 27: Dave Bjork, survivor. "It’s all about relationships."

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 27: Dave Bjork, survivor "It’s all about relationships." Twitter...
Thursday, November 26, 2015

Day 26: Christian Nataline, survivor. "You understand that we’re all interconnected to each other and with the planet."

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 26: Christian Nataline, survivor. "You understand that we’re all inter...
Wednesday, November 25, 2015

Day 25: Roz York Brodsky, survivor. "There is much more hope than there used to be"

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PROFILES IN LUNG CANCER Lung Cancer Awareness Month 2015 Day 25: Roz York Brodsky, survivor. "There is much more hope than there us...
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