While Mikaela has been enjoying settling in at home, Autumn decided to take matters into her own hands, and removed her feeding tube.
Oh, my! What have I done!
Was this a good idea? What's going to happen now?
To my pleasant surprise, the doctors have decided to try something a little bit different. Rather than following the very strict feeding schedule (she must take x number of mls every three hours, and anything she doesn't take by mouth goes in her feeding tube), they have decided to follow her lead. If she is a little bit more or less hungry at a feeding they will give her what she wants, if she needs to wait 3.5 hours between one of the feedings, that's okay.
What a great idea!
They are going to do this trial run for a few days and monitor her weight. If she stops gaining weight, or starts to lose weight, then it is back to the schedule and the feeding tube. So, Autumn, we will listen to you as long as you hold up your end of the bargain and keep gaining weight!