Tuesday, November 18, 2014

Breathing Easy

All is well in scanville! I've just passed my one year mark on the wonder drug Xalkori, and now I can breathe (relatively) easy until my next scan in three months.

Speaking of breathing, here is one of my favorite lung cancer infographics. 



At 3 pm EST today I will be participating in the WEGO Health Activist Twitter Chat (#hachat), which today is focused on lung cancer. Lung cancer bloggers Linnea Duff (@1111linno) and Samathan Mixon (@mixon_samantha) will also be participating, and my fellow ROS1er Janet Freeman-Daily will be guest hosting.

We will be addressing these questions:
  • Q1: Why do you share your lung cancer journey online? What motivates you to write a post?
  • Q2: What kind of info do mbrs of online lung cancer community want? What messages do you try to convey?
  • Q3: On which social media sites do you share lung cancer info? How do you choose what info to share on different sites?
  • Q4: How/where do you find content about lung cancer that you want to share? What makes content you find share-worthy?
  • Q5: How has the lung cancer information you share changed over time?
  • Q6: What reactions do you get to your lung cancer blogs and social media posts? What content gets viewed or “liked” most?

Please join us! It should be a lot of fun. 

1 comment:

  1. Anonymous10:20 AM

    I do admire your advocacy. I can't think that people would be as eager to read the musings of an older woman who owns the fact that she did NOT get mammograms. (remember the controversy?) I am enchanted with your saving of the pill bottles. It's akin to the way a placebo can work if a person believes it is working. Perhaps, reason does not have all the answers. Perhaps, some of the out of control stuff is in the interscies (sp) between reason/logic and the space where miracles happen. Like your drug.

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