tag:blogger.com,1999:blog-16194939.post2612649180802803426..comments2024-02-28T00:44:40.145-05:00Comments on A Lil Lytnin' Strikes Lung Cancer: Fighting the Wrong FightLil-Lytninhttp://www.blogger.com/profile/01853589591693544260noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-16194939.post-11622718621296518612014-07-11T07:07:51.903-04:002014-07-11T07:07:51.903-04:00Your post made me so glad - once again - that I do...Your post made me so glad - once again - that I don't live in America! When are you guys going to wake up and adopt a decent public health system? I hope it's soon because here in Australia our idiot politicians are pushing us further and further towards your godawful private system. <br /><br />My 86-year-old mum died recently from lung cancer with multiple metastases. The bill for all her scans, tests, treatments and final hospitalisation was zero. She paid for it all during her working life by paying tax. What exactly do your taxes pay for?Lindanoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-62061158662688215232014-06-16T09:37:27.848-04:002014-06-16T09:37:27.848-04:00Thanks for your comment, Ruth. It just seems so wr...Thanks for your comment, Ruth. It just seems so wrong that insurance companies are in this to make a quick buck at the expense if the very people they are supposed to be helping. I hope your treatment continues to go well, with no insurance challenges!Lil-Lytninhttps://www.blogger.com/profile/01853589591693544260noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-24439933098652427052014-06-16T09:35:04.240-04:002014-06-16T09:35:04.240-04:00Inga, I am so sorry to hear you have joined our lu...Inga, I am so sorry to hear you have joined our lung cancer family, but I'm am happy that this blog has been helpful to you. I hope Xalkori proves to be a wonderful drug for you. If you haven't already, check you Kim's blog, http://aquariusvscancer.com/. She is ALK and has written about her treatment including info about other ALK trials. Best of luck to you, and please reach out if you have any questions!Lil-Lytninhttps://www.blogger.com/profile/01853589591693544260noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-77867189388577194502014-06-12T19:38:44.688-04:002014-06-12T19:38:44.688-04:00I am so glad I found this blog! I have Stage 4 ade...I am so glad I found this blog! I have Stage 4 adenocarcinoma with a head full of brain mets. I was diagnosed in March, and was found ALK positive. I am on Crizotinib and have been for about a month. The radiation on my brain has shrunk those tumours and the drug is working on my one lung tumour and the lymph nodes. The side effects have been minimal. I am Canadian, so the drug is available through the public system. Normally one has to two a few rounds of traditional chemo and then apply to get the targeted drug. In my case (age 47 health mother) I got it right off the bat, which was so great. I have no idea how long my tumours were forming,I didn't have so much as a common cold for years.. and suddenly my head filled with water from tumours. I had headaches for a week then my doc sent me for a scan... and there they were. Silent little deadly killers. I am very interested in following the stories of people in my situation, because it is a brand new world for treating folks like us... and we should know what others are going through. Thank you for writing this blog!!!Inganoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-7599736544600829612014-06-06T13:15:15.629-04:002014-06-06T13:15:15.629-04:00What bothers me about this - is we Americans seem ...What bothers me about this - is we Americans seem to think this ought to be the norm - i.e. there is nothing new and this is what we should put up with.<br /><br />I think the huge fallacy is our assumption that a for-profit health care system for our country is by fiat - a better system, and therefore we should accept insurance companies doing whatever they can to avoid paying bills - because they want to make more money.<br /><br />If we even look outside our American bubble of Rah-Rah-Rah nationality we're the best etc. We will find that we're the only advanced country in the world that doesn't provide universal and affordable health care for all our citizens. <br /><br />In a country where wealth inequality has now reached 1920s robber baron gilded age levels - when are we Americans going to wake up - and realize that we can do better for ourselves as a country by pooling our resources (at least on some things such as health care). That allowing our health care system to be run by a relatively few huge corporations that are in it for profit, and have a repeated record of attempting to get out of their obligations and/or denying coverage etc - that we too, as a country, would be far better off if we ditch these corporations ad adopted a Single Payer plan for our entire country and for all Americans. It would help all of us - we wouldn't be saddled with disastrous medical bills or the additional stress of insurance companies fucking with us - and we would probably all end up a lot healthier. <br /><br />Perhaps the only group of Americans that might not benefit as much from Single Payer would be the ultra-wealthy, who god forbid, might have to pay some extra taxes and/or the corporations they own might have to be profitable in other businesses other than human health.<br />jamentanoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-4337314784128256742014-06-06T08:38:06.978-04:002014-06-06T08:38:06.978-04:00This fighting with insurance companies is nothing ...This fighting with insurance companies is nothing new. I was an RN from 1969 to 1989ish working in hospitals, and this is an age-old story. The insurance companies are in business to make a profit, not help their customers, and that sucks! <br /><br />I've been fortunate with insurance companies in my cancer journey; the only fight I have had is with a hospital for a procedure that both I and my insurance company paid for. I finally got my money back after I called the hospital's PR person - amazing how bad publicity or the threat thereof will get more results!Anonymousnoreply@blogger.com