tag:blogger.com,1999:blog-16194939.comments2024-02-28T00:44:40.145-05:00A Lil Lytnin' Strikes Lung CancerLil-Lytninhttp://www.blogger.com/profile/01853589591693544260noreply@blogger.comBlogger601125tag:blogger.com,1999:blog-16194939.post-10429038305153354112021-01-07T12:05:44.450-05:002021-01-07T12:05:44.450-05:00Glad the "Guru" found an alteration and ...Glad the "Guru" found an alteration and Ceretinib can attack it! Best of Hope~Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-49057197746034589422021-01-07T00:47:17.093-05:002021-01-07T00:47:17.093-05:00You should try to get your doctor to prescribe Met...You should try to get your doctor to prescribe Metformin (used by diabetes patients) which is an IGF-1 inhibitor. Or consider tamoxifen. Please go to care oncology.com and get in with them asap to try off-label drugs to help enhance your existing treatment... prayers to you!! and hang in there. Unknownhttps://www.blogger.com/profile/03434425160233669834noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-7603259514196364002020-10-07T07:11:39.169-04:002020-10-07T07:11:39.169-04:00This is wonderful news in a time we can use some! ...This is wonderful news in a time we can use some! So happy for you.dearmaizienoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-78369028450953922252020-10-05T18:38:02.622-04:002020-10-05T18:38:02.622-04:00God bless you and may you continue your fight with...God bless you and may you continue your fight with the strength of the warrior you are!! So happy to hear the news!!<br />maryhh82https://www.blogger.com/profile/08175551318381093521noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-89069491727652868742020-10-05T18:14:53.808-04:002020-10-05T18:14:53.808-04:00Great news, hope you continue to improve and feel ...Great news, hope you continue to improve and feel better!Robinhttps://www.blogger.com/profile/11946013805052703096noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-13631393216875926722020-10-05T08:10:08.578-04:002020-10-05T08:10:08.578-04:00This update in my inbox filled me with so much joy...This update in my inbox filled me with so much joy! Thank you for filling us in and for being generally such an amazing inspiration! magzillahttps://www.blogger.com/profile/07471227203294151458noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-16010066947324904912020-08-16T19:00:23.589-04:002020-08-16T19:00:23.589-04:00Sending thoughts of strength and great hope, Tori....Sending thoughts of strength and great hope, Tori. I am keeping you in my thoughts. Corinnehttps://www.blogger.com/profile/08513459253645179394noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-14657657513914950742020-08-07T06:02:54.627-04:002020-08-07T06:02:54.627-04:00Hi Tori,
I honestly don’t know what to say except...Hi Tori,<br /><br />I honestly don’t know what to say except that you are a truly amazing woman. The power of these blogs to share inspiration and insight is astounding. Beaming all our power of positive thoughts, wishes and prayers for you. <br /><br />Huge hugs kerensa xoxoxoKerensahttps://www.blogger.com/profile/12116719304811378135noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-59001244280369123222020-08-05T06:58:13.346-04:002020-08-05T06:58:13.346-04:00Tori, you've been such a motivation and inspir...Tori, you've been such a motivation and inspiration to me since I was diagnosed two years ago. I think of you with love often and am sending you all my good thoughts. Here's to this round of chemo knocking the cancer back another 7 years. I share only because I haven't seen you mention it but I've had amazing results fasting before/ during treatment. Stage IV spread to 4 tumors in the brain (and everywhere else). Now cancer free for 10 months and counting. <br /><br />Sending you all my love!magzillahttps://www.blogger.com/profile/07471227203294151458noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-22068921499884996892020-08-04T15:49:04.172-04:002020-08-04T15:49:04.172-04:00Lots and lots of good vibes coming your way! I, l...Lots and lots of good vibes coming your way! I, like Bryan, think you are an inspiring young women. Keep on keepin on and keep us posted!SharLarhttps://www.blogger.com/profile/17413705803803447659noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-26969490875742961882020-08-04T08:26:17.377-04:002020-08-04T08:26:17.377-04:00Tori,
I, too am a stage-4 "live-er". ...Tori,<br /><br />I, too am a stage-4 "live-er". Diagnosed in 2011, just a little before you with a little girl as well. I found your blog early on and have been reading everyone. I have far outlived my diagnosis and been through some rough times/treatments. All that to say, I can relate to many of your experiences with your up/down treatments and lifestyle. You have encouraged me a lot from a far. I know I have folks who read my blog that I do not know, and it's always cool to get a surprise note from them. So, this is your surprise note, from someone you don't know. I do pray for you and have thought a lot over the years about your plight with a family....and this is what I wrestle with as well. My heart sinks a little every time I see "A Lil Lytnin' Strikes" in my in box, but know that I'm routing for you and I am praying for you and your journey. Thanks for sharing your tough road! Bryan in Colorado SpringsBryanhttps://www.blogger.com/profile/05996034937162373701noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-22082338430516860572020-05-30T11:57:12.015-04:002020-05-30T11:57:12.015-04:00Time flew by. I still remember the picture of you...Time flew by. I still remember the picture of you with the "little" kids. They are all grown BIG kids now! Whatever happens in the next hurdle that will come at you, embrace these BIG kids and rejoice that fact that YOU are here, NOW! I don't know what the next course maybe, but keep us posted and we will be behind you all the way! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-57709734772538676232020-05-30T06:58:54.974-04:002020-05-30T06:58:54.974-04:00Every post from you is hope for me. It's been ...Every post from you is hope for me. It's been only 19-1/2 months since I was diagnosed with stage 4 lung cancer spread everywhere. Only two brain tumors then. Two more 3 months later, around the time I found you and my hope grew.<br /><br />It's now been 7 months that I've been NAD, all my tumors but the primary completely resolved. I wish the same miracle for you. I know it's possible. You've turned 8 months into 7 years - you can already work miracles. <br /><br />Sending you love every day!magzillahttps://www.blogger.com/profile/07471227203294151458noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-54102820902929275632020-04-26T09:04:04.732-04:002020-04-26T09:04:04.732-04:00Beautifully stated Torrie.Beautifully stated Torrie.Shelley #1noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-19207635388951266782020-04-17T19:23:41.489-04:002020-04-17T19:23:41.489-04:00Thank you for sharing your lung cancer experience ...Thank you for sharing your lung cancer experience with the world. Your blog has been a big source of comfort, encouragement and information to me. My sister, Kim, was diagnosed with stage 4 lung cancer about two years ago. One of the first articles she emailed me about stage 4 lung cancer was written by you. Knowing that someone with kids had lung cancer--and was a nonsmoker and a relatively young person like my sister--made me feel much better. My sister told me that many people with lung cancer can live for years and manage their disease much like someone would manage a chronic auto immune condition. Your words, attitude and honesty gave us hope. My sister fought really hard. Early on, she said there wasn't anything she wouldn't go through for her kids. Sadly, she lost her battle on April 14, 2020. I wish she could have been diagnosed earlier. Her lung cancer oncologist was at Johns Hopkins in DC and a real expert. He said that the cancer had been growing silently in her body for 7 years before she developed symptoms. I wish you the best and I thank you for being such a wonderful role model for other lung cancer patients.Jules2588https://www.blogger.com/profile/07674836875705071536noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-35951021982785546712020-04-15T05:54:18.335-04:002020-04-15T05:54:18.335-04:00SEI UNA GRANDE ! Un bacio dall'Italia. <3SEI UNA GRANDE ! Un bacio dall'Italia. <3 <br />ROBERTAnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-37895999197765637332020-04-14T12:11:04.238-04:002020-04-14T12:11:04.238-04:00This is an exceptional read and resonated powerful...This is an exceptional read and resonated powerfully. Living in the moment, free to dream of the future but unattached, has been one of the many lessons I've learned from these 18 months with cancer. You continue to be a light and inspiration to me. Thank you.magzillahttps://www.blogger.com/profile/07471227203294151458noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-65275839529850072562020-04-13T20:36:41.747-04:002020-04-13T20:36:41.747-04:00Miss you Tori! Thanks for this post today. Pleas...Miss you Tori! Thanks for this post today. Please keep on being so very authentic and inspiring.<br />-JamesJames T.noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-50836099893479276422020-04-13T13:16:08.208-04:002020-04-13T13:16:08.208-04:00Beautiful and so on target today. I hope you stay ...Beautiful and so on target today. I hope you stay as healthy as can be Tori!painting with firehttps://www.blogger.com/profile/01578014572547587329noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-40199082170058737482019-11-11T06:57:45.366-05:002019-11-11T06:57:45.366-05:00Just an echo of Bridgit's comment. I'm sor...Just an echo of Bridgit's comment. I'm sorry for everything you're going through but was SO THRILLED to get this in my inbox. <br /><br />I noticed some balance issues about 3 months after my second round of brain radiosurgery - immediately after I lost the hair in that area. Yoga seems to be helping a bit - and also making my struggles more obvious when I immediately fall over during every one-legged pose and wobble around for the two-legged poses. Sitting poses, on the other hand, are my jam. <br /><br />The rising tumor markers are a bitch and a bummer. Mine have always seemed to correlate with tumor size. I'm keen to see what happens there.<br /><br />I'm so grateful that your pleural effusion fluid can go to good use helping the rest of us. Thank you for being the pioneer, beacon of hope, and inspiration for ROS1ders everywhere!<br /><br />Finally, I haven't even mentioned this on my blog yet but my scan 2 weeks ago showed "complete remission" one year after my diagnosis. The only change I made since the previous scan was to add the Care Oncology Clinic Metabolic Protocol to my lorlatinib (and to reduce lorlatinib due to cognitive and liver side effects). I don't know if you're able to do two trials at once... I imagine not... but it may be worth looking into. https://careoncology.com/ <br /><br />Much love, light, and thoughts of healing your way!magzillahttps://www.blogger.com/profile/07471227203294151458noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-86050576683261646942019-11-08T16:59:17.378-05:002019-11-08T16:59:17.378-05:00The last quote is wonderful. I’m sorry for all the...The last quote is wonderful. I’m sorry for all the bumps in the road you’re facing, and I’m so very glad you’re still facing them. And that you are sharing your journey with us. I’m grateful for you. And sending you prayers and love.Bridgithttps://www.blogger.com/profile/14104225416454692138noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-85223631718054406662019-08-09T21:31:29.710-04:002019-08-09T21:31:29.710-04:00Holding you and your family in my heart, Tori. Pr...Holding you and your family in my heart, Tori. Prayers without ceasing! Sending much love to you.Patricia Zimmeernoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-50990476835703688232019-08-07T13:32:08.913-04:002019-08-07T13:32:08.913-04:00What a beautiful, inspiring family! May you enjoy...What a beautiful, inspiring family! May you enjoy many more years together! Always in my prayers, Tori!<br />Deb Factorhttps://www.blogger.com/profile/08774865643673388856noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-36595509122944630722019-08-05T23:48:36.563-04:002019-08-05T23:48:36.563-04:00The love in your family shines bright in those bea...The love in your family shines bright in those beautiful pictures. You continue to amaze. Holding you in my thoughts dearmaizienoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-80161181918141870972019-05-31T11:03:44.206-04:002019-05-31T11:03:44.206-04:00You just made my day. Thanks.You just made my day. Thanks.dearmaizienoreply@blogger.com