tag:blogger.com,1999:blog-16194939.post7936446751769041381..comments2024-02-28T00:44:40.145-05:00Comments on A Lil Lytnin' Strikes Lung Cancer: Brain Surgery Light v2.0Lil-Lytninhttp://www.blogger.com/profile/01853589591693544260noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-16194939.post-80859294461908529742016-05-16T21:55:56.154-04:002016-05-16T21:55:56.154-04:00Tori,
It is one of the THOSE days. Wondering how ...Tori,<br /><br />It is one of the THOSE days. Wondering how long I can manage. Test results tomorrow. The endlessness of it. On the other hand, I have kids and grand kids who love me and want me to keep going. But I can hear the mix of tired and grateful in your voice. I think I can understand that mix.I thought I lost my necklace today, the one the kids wrote wishes and prayers and tucked into that little box at the end of the cord. Oh was I freaked! Rational me said, 'Mary get a grip. Get another one. The good wishes are with you." Scared me said, "It's and omen." Well, I found it. tangled in the scarf I pulled off and stuffed in a pocket because I was tired. Yeah.<br /><br />Mary<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-83098453056588305062016-05-12T10:24:57.653-04:002016-05-12T10:24:57.653-04:00I am so sorry to read this but relieved to see it ...I am so sorry to read this but relieved to see it written. It IS hard. My son is two so doesn't understand. I can only imagine how much harder it will get as he gets bigger. I am thankful to be here for him for as long as I can, but I am growing very tired of holding my head up and being strong and fine. It's hard - and I don't give myself enough space to say so or even feel it's weight. Thank you for the post - I'll be thinking of you and looking for more of your insightsPersistent, patient, chronichttps://www.blogger.com/profile/05606046972875371701noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-20802647635295497892016-05-10T14:36:49.751-04:002016-05-10T14:36:49.751-04:00Sorry to hear of your battle with lung cancer. It ...Sorry to hear of your battle with lung cancer. It takes a lot of courage to blog about your journey and just remember that you are helping others by sharing your experience.<br /><br />If you would have ever considered a trying a clinical trial, there is one for lung cancer patients - check out www.startrktrials.com to see if you qualify and if there is a clinic near you.<br /><br />God Bless.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-81498451066059804412016-05-07T22:36:29.097-04:002016-05-07T22:36:29.097-04:00Wow tori you are inspirational. Puts my difficult ...Wow tori you are inspirational. Puts my difficult moments as a mother in perspective! Your big sister Rachele was my home birth midwife and she told me about you. I send you love and light and genuinely pray that for you and your family's sake - that the medication you are on stops any more mets appearing. �� Ange Rrowuhttps://www.blogger.com/profile/06572486556201842551noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-70045766841334124612016-05-07T12:00:55.971-04:002016-05-07T12:00:55.971-04:00Tori, this is an amazing story. You are a skilled ...Tori, this is an amazing story. You are a skilled writer and very strong to be telling your story out there for the world to read. I had a very similar experience with my children and my struggles with cancer. Personally I was not able to keep my mask because I couldn't bare to look at it again because of the very real and painful memories. I asked the cancer center to throw it out. I was not strong enough to bring it into my home, to let my children touch it or see it. I knew seeing it would make me cry every day going forward. This was two years ago and I have not needed it again. Reading your blog makes those memories come back strong. <br />Cancer, its a part of yours and my life now. You are right metastatic is forever or until it takes us. This is scary. My children are too young. They were 3 when I was diagnosed. They never knew mommy without cancer, and yet I think they know every bit of the resilient mom I am and have always been. I try always to give them normal mom. <br />I continue to pray that each advance in medicine brings us closer to the point that cancer is only a chronic condition. Just like any of the others, we take our medication and it keeps everything in check. Its stops working, we switch to something else....the new med helps us and works for years to come. Not a cure, just treatment. That's my wish and I think its possible.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-66468328053017368742016-05-07T10:17:50.011-04:002016-05-07T10:17:50.011-04:00I'm sure very free kids have played with a rad...I'm sure very free kids have played with a radiation mask. My first thought was "aww poor babies to have this in their life." But then I realized how resilient they are to reenact and play. This cancer life is hard and we all have a different journey yet can totally relate to each other. Hugs to you ToriAnonymoushttps://www.blogger.com/profile/07557797091890586556noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-50960074235241285392016-05-07T00:07:39.571-04:002016-05-07T00:07:39.571-04:00Tori, my heart aches for you every time I see a ph...Tori, my heart aches for you every time I see a photo of you and the kids and each time you relate a story of the kids. Of course, I am thinking, "How long does she get?" Then I think of all the bottles of Xalkori and rejoice. Then I read about a second brain met and my heart sinks. This is the first time you have shared the horrorific results of needing to lie down when the kids need you. Love to you, love to you.<br />Nancy GleasonAnonymoushttps://www.blogger.com/profile/10946882108594659750noreply@blogger.comtag:blogger.com,1999:blog-16194939.post-1800622389812705432016-05-06T23:47:55.894-04:002016-05-06T23:47:55.894-04:00Tori, it is incredibly hard and although I can'...Tori, it is incredibly hard and although I can't relate to every aspect of your journey, your last paragraphs really resonated. Love and strength.<br /><br />LinneaLinnea Olsonhttp://www.outlivinglungcancer.comnoreply@blogger.comtag:blogger.com,1999:blog-16194939.post-193110087796596712016-05-06T23:32:44.047-04:002016-05-06T23:32:44.047-04:00Tori, you are so brave and write so beautifully th...Tori, you are so brave and write so beautifully that as we read your words, we can almost feel the way you are living....a really, really hard life...a life you should never have had to live. Yet, you do make the best of what you have been dealt. We do hope that your dear children and devoted husband as well as your fine parents, siblings and ever-so-many friends do add some sparkle to your life! We have known you since you were 2 years old, recognized your exceptionally fine character and have always loved you. This blog definitely brought tears to our eyes. With love, Mike and ConnieCaring friendshttps://www.blogger.com/profile/04052140447755899416noreply@blogger.com